The Sister Study
From 2004 to 2009, more than 50,000 women across the US and Puerto Rico, who were between ages 35–74 and whose sister had breast cancer, joined this landmark research effort to find causes of breast cancer. Because of their shared environment, genes, and experiences, studying sisters provides a greater chance of identifying risk factors that may help us find ways to prevent breast cancer.
The Sister Study is currently tracking the health of women in the cohort. Participants complete health updates each year, as well as detailed questionnaires about health and experiences every two-to-three years. Research in the Sister Study focuses on causes of breast cancer and other health issues in women, as well as on factors that influence quality of life and outcomes after a breast cancer diagnosis.
Access to the data is not completely open, but there is a process for access. Click on the above link for instructions.