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Almirall says comparing SMART designs will increase treatment quality for children with autism

Thompson says America must "unchoose" policies that have led to mass incarceration

Alter says lack of access to administrative data is "big drag on research"


Knodel honored by Thailand's Chulalongkorn University

Susan Murphy to speak at U-M kickoff for data science initiative, Oct 6, Rackham

Andrew Goodman-Bacon, former trainee, wins 2015 Nevins Prize for best dissertation in economic history

Deirdre Bloome wins ASA award for work on racial inequality and intergenerational transmission

Next Brown Bag

Monday, Oct 12 at noon, 6050 ISR
Joe Grengs: Policy & planning for transportation equity

Demographic Data Sharing and Archiving

a PSC Research Project

Investigators:   Mary McEniry, James McNally, Felicia B. LeClere, George C. Alter

Beginning in 2003, the National Institutes of Health developed an explicit data sharing policy which encouraged scientists whose research is funded by NIH to develop ways to share their research data with the public and, more specifically, their fellow scientists. This policy coupled with other federal data sharing requirements and the explicit recognition of the synergistic value to science of broad based data sharing among scientists with similar substantive interests has led to a substantial and important expansion of structured and unstructured data archives and repositories. The first cycle of funding for this project established the basis for data infrastructure to support demographers housed at population centers and those researchers whose data collections have particular relevance to demographic research. The project proposed here is a continuation of a five year cooperative agreement that provides data archiving, preservation and dissemination and other data infrastructure services. The specific aims of this project complement the original agreement’s goals which included (1) data acquisition, curation, dissemination, and preservation (2) restricted use data sharing (3) user support and outreach, and (4) improvements in the science of data sharing including disclosure risk evaluation, complex data conceptualization and shared frameworks for data sharing (the legal framework) and data documentation (the Data Documentation Initiative). In this phase of the project, we bring new technologies and data architecture to help reengineer how we provide these services and to expand the integrated infrastructure support that will help improve the delivery of the parts of the demographic data collection that reside at ICPSR and those that reside in affiliated population centers. The goal is to work toward a legal, technical, and substantive framework in which to share research data in the population sciences. Specifically, with partners at the Carolina Population Center, Minnesota Population Center, Hopkins Population Center, Rand Population Research Center and the Michigan Population Studies Center, we will add new technologies to provide open source methods of data curation and dissemination.

Funding Period: 07/01/2009 to 09/24/2014

Country of Focus: USA

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