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National Long-Term Care Survey, 1982-1989: 1989 [United States]

PSC Data Catalog: Study Bibliographic Details:

Access to Files:Data and Documentation
Title:National Long-Term Care Survey, 1982-1989: 1989 [United States]
Study Number:666
Catalog Date:05/27/1998
Primary Investigator(s):Manton, Kenneth G.
Access Restrictions:No
Abstract:The three surveys that comprise this collection are part of an ongoing longitudinal data collection effort that represents the entire aged population. It focuses on the initially noninstitutionalized, but functionally limited, elderly in the United States. Duke University's Center for Demographic Studies has functioned as study director since 1987. Prior to that date, the Health Care Financing Administration (HCFA) conducted the survey. The complex design of the study aims to provide data on the extent and patterns of functional limitations in basic and instrumental activities of daily living (as measured by the Activities of Daily Living [ADL] or Instrumental Activities of Daily Living [IADL]), availability of and details on informal caregiving, transitions with respect to improved and worsening limitations, movement into and out of institutional care, and death. The time span covers many significant changes in health-care delivery laws and policies. Beginning with a screening sample in 1982, subsamples were followed and others subsequently added. Detailed interviews were conducted by HCFA with home-dwelling impaired elderly in 1982 and 1984 (Part 1). Informal caregivers were interviewed in 1982, and a special interview with institutionalized respondents or their proxies was conducted in 1984. The 1989 National Long-Term Care Survey (NLTCS) (Part 17) constituted the third round of data collection on this national sample of elderly persons at risk of or already experiencing chronic impairments. The 1989 NLTCS collected longitudinal data on those elderly persons who in 1982 or 1984 had been identified as functionally impaired or institutionalized. Additionally, the 1989 Screener was used to identify other persons in the sampling frame who, although functionally unimpaired or under age 65 in 1984, had by April 1988 turned 65 and developed functional impairments or were institutionalized for long-term care. The 1989 Institutional Questionnaire obtained data on the institutionalized persons' cognitive functioning, ADL status and care, admission and payment for the care, income and assets, and the institution's certified beds. The 1989 Community Questionnaire collected data on the noninstitutionalized impaired persons' medical conditions, ADL and IADL, help with these activities, range of motion and impairment, other functioning, housing and neighborhood characteristics, health insurance, medical providers, prescription medicines, cognitive functioning, military service, ethnicity, and income and assets. For those community-dwelling respondents who reported help by informal caregivers, interviews were sought with the caregiver who provided the most hours of unpaid help. All persons for whom 1989 information was collected on any of the data collection instruments (Screener, Community Questionnaire and Caregiver Selection Procedure, Survey of Informal Caregivers, and Institutional Questionnaire) are represented in Part 17, 1989 Data, by one record with Screener variables, followed by data from the interviewer's control card and other instruments as applicable. Medicare records, both Part A and Part B, organized according to home health agencies and inpatient/skilled nursing facilities/Christian Science, are provided from 1982 onward as Parts 2-3, 6-7, and 9-15. Complete vital status information is provided in the Medicare data. Medicare Parts A and B administrative records from 1988 to 1991 are located in five separate files (Parts 18-22) according to service type (home health, hospice, inpatient, outpatient, and payment). These files are linked to one another and to the 1989 data file via a common anonymous identifier. Part 24, the Analytic File, includes administrative and analytic information on deaths, longitudinal weighting, health, functioning, and special equipment variables for the 1982, 1984, and 1989 surveys and allows the user to choose from a wide array of options for examining the health and service use of the aged popul
Universe:Persons in the United States 65 years old and older with limitations in Activities of Daily Living (ADLs) or Instrumental Activities of Daily Living (IADLs), who were either living in the community (1982 and 1984 surveys) or institutionalized (1984 survey only). For the 1989 survey, persons 65 years of age on April 1, 1989, dwelling either in institutions or in the community in the 50 states of the United States.

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