Help Establish Standard Data Collection Protocols for COVID-19 Research
Contribute to the PhenX COVID-19 Crowdsourcing Effort by participating in a short, anonymous survey. This activity should take you 5 to 10 minutes to complete. Your response will help PhenX create collections of recommended measurement protocols for COVID-19 research.
With thanks to all who participated topic grouping in Phase 2, here is a preview of the results:
Top Group Categories For Researchers:
1. Race, Ethnicity and Demographics
2. Socioeconomic Impacts
3. Personal Risk Factors
4. Mental Health
5. COVID-19 Information and Sources
6. Treatment, Outcomes and Medical history
Top Group Categories for Non-researchers:
1. Treatment, Outcomes and Diagnosis
2. Race, Demographics and Socioeconomic Impacts
3. Mental and Physical Health
4. Personal Choice and Information
Collaborators in the PhenX COVID-19 project include the U.S. National Institutes of Health (NIH) Office of Behavioral and Social Sciences Research (OBSSR), the National Institute of Environmental Health Sciences (NIEHS), the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), the National Institute of Allergy and Infectious Diseases (NIAID), the National Library of Medicine (NLM), and the National Human Genome Research Institute (NHGRI). Disaster Research Response (DR2) serves as a repository for disaster-related data collection tools, including COVID-19 surveys. The PhenX Toolkit is a catalog of recommended measurement protocols suitable for use in a variety of research study designs involving human participants.
PhenX is funded by the National Institutes of Health (NIH) Genomic Resource Grant (U41HG007050) from the National Human Genome Research Institute (NHGRI) with current or prior funding support from the National Institute on Drug Abuse (NIDA), the Office of Behavioral and Social Sciences Research (OBSSR), the National Institute of Mental Health (NIMH), the National Heart, Lung, and Blood Institute (NHLBI), the National Institute on Minority Health and Health Disparities (NIMHD), and the Tobacco Regulatory Science Program (TRSP).