Development of the RWJF Health and Medical Care Archive, 2018-2019
This project addresses ways to increase the capacity of the Health and Medical Care Archive (HMCA) for identifying, collecting and disseminating data. This proposal outlines a strategy to identify Robert Wood Johnson Foundation (RWJF) grantee data for archiving; increasing support to grantees; and also servicing a larger stream of incoming data for public access through HMCA. In recognition of increasing needs to clarify data sharing expectations placed on grantees and provide data archiving services for more data, we propose the following set of objectives. First, we will establish a process for identification and selection of data collections funded by the RWJF. Second, we will enhance the data submission experience and improve data quality by developing training and support for the researchers and clarifying expectations around data sharing requirements early in the data life cycle. Third, we will develop expanded options for data curation to ensure project resources for curation are applied to maximum benefit of the research community. Fourth, we will improve the findability of data by improving website functionality. Fifth, we will expand outreach and training by taking advantage of additional ICPSR communication strategies, including social media. In summary, HMCA's strategy is to maximize the research investment of the RWJF in our approach to ingest, curate, preserve and make accessible data. Because we will begin to offer different levels of curation to incoming data, it is possible that data receiving less curation will not be readily usable by HMCA users and thus require further improvements which can be made in the future. The proposed activities will create additional capacity for ICPSR to work with a broader set of RWJF-funded data collections to improve their use, ensure transparency, and add to the evidence-base on health care and health care policy by focusing its efforts on higher value data.
Robert Wood Johnson Foundation
Funding Period: 3/1/2018 to 2/29/2020