Margaret Levenstein

Optimizing Openness in Human Participants Research: Harmonizing Standards for Consent Agreements and Data Management Plans to Empower the Reuse of Sensitive Scientific Data

Research Project Description
Margaret Levenstein, Lynette Hoelter

ICPSR will collaborate with Syracuse University to play a key role in leading the proposed workshops and preparing the training materials and templates. Specifically, the PI and co-I will work with Elman and Kapiszewski to select individuals with relevant experience to attend the workshops, conduct outreach to ensure participation, lead the ?listening sessions,? develop training materials and templates, and lead the workshops to pilot test these materials. They will also be involved in authoring the resulting white paper about the challenges researchers and IRBs face with regard to sharing sensitive scientific data and the ways in which those can be addressed with standard language and relevant instruction.

Funding:
National Science Foundation
(subcontract: 30492-05064-S01)

Funding Period: 10/1/2018 to 9/30/2020

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