Optimizing Openness in Human Participants Research: Harmonizing Standards for Consent Agreements and Data Management Plans to Empower the Reuse of Sensitive Scientific Data
ICPSR will collaborate with Syracuse University to play a key role in leading the proposed workshops and preparing the training materials and templates. Specifically, the PI and co-I will work with Elman and Kapiszewski to select individuals with relevant experience to attend the workshops, conduct outreach to ensure participation, lead the ?listening sessions,? develop training materials and templates, and lead the workshops to pilot test these materials. They will also be involved in authoring the resulting white paper about the challenges researchers and IRBs face with regard to sharing sensitive scientific data and the ways in which those can be addressed with standard language and relevant instruction.
Funding:
National Science Foundation
(subcontract: 30492-05064-S01)
Funding Period: 10/1/2018 to 9/30/2020
PSC In The News
Barbara Anderson weighs in citizenship question on 2020 census
Stern quoted in Smithsonian Magazine article on eugenics movement
Hicken et al. find neighborhood social context affects black kidney patients
Highlights
Morenoff elected Secretary of APC Association of Population Centers for 2019
